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An update on my condition
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Con Artist

Jul-28-2016 21:20

Hi everyone.

I realize not everyone knows of cares about what's going on with me (and that's fine! 😉)

But for those who do, it's easier for me to do this than send individual PMs.

To sum up, on Saturday, the 16th, I noticed I was losing my peripheral vision in my left eye. This terrified me. I told Justin (jroepel, my fianće) after he got home from work.

By Sunday, I was essentially blind in that eye. We went to the ER. They did a head CT and some blood work. The bloods were fine. The CT showed something called an arachnoid cyst. Apparently they're common, benign and don't usually cause symptoms. So it wasn't the problem. The ER doc referred me to an ophthalmologist.

On Monday I rested because I was exhausted.

Tuesday I called the opth and got an appointment that afternoon. He said my eyes were identical. No obvious problems. The loss of vision was probably because of inflammation of the optic nerve. He wanted to see my eyes without dilation, so I went back Wed morning.

Wednesday he looked again and there was no change. Retina had no tears or anything like that. He ordered an MRI. I got that done that afternoon.

Thursday morning he called to tell me the MRI showed inflammation of the optic nerve. It also showed I have Multiple Sclerosis. He ordered a 5 day course of steroid infusions and referred me to a neurologist.

I went to the hospital everyday so they could pump massive amounts of steroids into my system.

I was lucky, blessed, whatever, that the neurologist could see me on Tuesday, the 26th. Appointments usually take months to get. I got seen within a week.

On Tuesday, I finished the steroids and saw the neuro. He was great.

He showed me the MRI so I could see the lesions on my brain. There are about a dozen, which he indicated was a small amount. The lesions were fairly small. The two biggest ones were in my vision and balance centers. Surprisingly the one in the vision center was not causing the problems with my vision.


luc pfeiffer
luc pfeiffer

Aug-5-2016 23:07

Hi Autumn! are the new medications kicking in yet? Good luck with the veggies! i personally recommend the purple potato and white pizza with spinach. oh, and guacamole! Hope you ARE getting lots of sleep (with or without balding purring feline tummies on your pillow)! Hope you are feeling better and a CHEER out to J.R.!!! Caregivers and other halves don't get nearly the amount of kudos that they deserve. L

Con Artist

Aug-7-2016 03:09

Thank you everyone!

Jas, thank you for the prayers and encouragement. And his and kisses to you and little happier as well.

Luc, you're right. I think it's harder to watch a loved one go though something hard or painful than it is to be the one going through it. Justin has been wonderful. Even when I've begged him to leave me so he doesn't have to go through this.

I gave myself my first injection on Friday. My next one will be on Monday, and a nurse is coming to help me learn about the auto injector (I just used the syringe) and tips and tricks.

A few days ago, I called my neuro because in the 3 days prior to that I *may* have gotten about 10 hours of sleep. So he changed how I take my medication for sleeping and twitching. It seems to have made a difference. I've actually been sleeping so deeply Justin has had trouble waking me up! I think that's just because I'm so sleep deprived at this point.

My eyesight is slowly returning. In fact, I can now read with both eyes open! Today is the first day I've been able to do that since this all started, which I guess was almost a month ago! I've had to close my left eye in order to read.

I can't read for long because it gets tired easily, and it starts to hurt after a while, but I can use it! And I'm sure that's just because it's been so long since it's been used.

Overall, I'm improving I think. Sleeping better, eye improving, started my "disease modifying medication" and taking my vitamin d. I still haven't decided if I'm going to add calcium yet. It makes sense to but the doctor didn't mention it so I'm not sure.

Anyway, back to catching Olaf the Weasel!

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