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An update on my condition
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Autumnsprings
Autumnsprings
Con Artist

Jul-28-2016 21:20

Hi everyone.

I realize not everyone knows of cares about what's going on with me (and that's fine! 😉)

But for those who do, it's easier for me to do this than send individual PMs.

To sum up, on Saturday, the 16th, I noticed I was losing my peripheral vision in my left eye. This terrified me. I told Justin (jroepel, my fianće) after he got home from work.

By Sunday, I was essentially blind in that eye. We went to the ER. They did a head CT and some blood work. The bloods were fine. The CT showed something called an arachnoid cyst. Apparently they're common, benign and don't usually cause symptoms. So it wasn't the problem. The ER doc referred me to an ophthalmologist.

On Monday I rested because I was exhausted.

Tuesday I called the opth and got an appointment that afternoon. He said my eyes were identical. No obvious problems. The loss of vision was probably because of inflammation of the optic nerve. He wanted to see my eyes without dilation, so I went back Wed morning.

Wednesday he looked again and there was no change. Retina had no tears or anything like that. He ordered an MRI. I got that done that afternoon.

Thursday morning he called to tell me the MRI showed inflammation of the optic nerve. It also showed I have Multiple Sclerosis. He ordered a 5 day course of steroid infusions and referred me to a neurologist.

I went to the hospital everyday so they could pump massive amounts of steroids into my system.

I was lucky, blessed, whatever, that the neurologist could see me on Tuesday, the 26th. Appointments usually take months to get. I got seen within a week.

On Tuesday, I finished the steroids and saw the neuro. He was great.

He showed me the MRI so I could see the lesions on my brain. There are about a dozen, which he indicated was a small amount. The lesions were fairly small. The two biggest ones were in my vision and balance centers. Surprisingly the one in the vision center was not causing the problems with my vision.
Cont.

Replies

Vulkie3
Vulkie3
Haynes

Jul-29-2016 04:24

Thank you very much for the update Autumn. Again, my best wishes to you and Jroepel, and hopefully, you'll keep it up like you've been doing so far - it's very inspiring to see that you're not about to give up.

I fully agree with Breit on taking enough rest and listening to your body, even if that means you've got to set some limits on your daily schedule. Try to work on it, because it'll only get harder the more you delay it...


Ms Helen
Ms Helen
Con Artist

Jul-29-2016 10:47

*Hugs*

Theres's really not much more I can say than we've already said but you know I'm here if you need me :)

Autumnsprings
Autumnsprings
Con Artist

Jul-29-2016 11:02

thanks guys. the hardest thing for me will be resting. even if i'm exhausted i can still have trouble sleeping. it's quite frustrating. but im going to have to learn!

My auto injector thing came today for my medicine. This thing is like a foot long! It's not subtle at all, lol.

BadAss
BadAss
Charioteer

Jul-29-2016 11:22

If you have a hard time falling asleep, picture yourself doing a villain hunt and getting an endless string of repeat clues.

Vulkie3
Vulkie3
Haynes

Jul-29-2016 11:47

^ not sure how that helps with sleeping - imo, that's more of a nightmare and makes me want to wake up asap :P



Autumnsprings
Autumnsprings
Con Artist

Jul-29-2016 11:49

i agree with vulkie! that would amp my heart rate up through the roof!! i'll just imagine ive had the easiest villain hunt ever and the prince wants to give me everything!



Keira Ann
Keira Ann
Bloodhound

Jul-29-2016 15:52

Thanks for the update. I echo what Breit said. Listen to your body and know your limits.



luc pfeiffer
luc pfeiffer
Red-Nosed

Jul-31-2016 02:22

hi Autumn -- Breit / Anne is a wise soul about all of this; I find that her advice is often sage, if not necessarily easy to implement in one's life. Please let us know if there is something we can help you with. Privately, I would advise that inflicting bald spots on Lucky Kitties' Tummies is an admirable goal. I only got to put one or two on Missy / Molly, but i'm doing much better with my 22 pounds of purring love. Also, if you like it, a cup of herb tea is a wonderful occasion to stop what one is doing and reflect. My best to you and Justin. L / Not Breit for those who remember that moniker.

Autumnsprings
Autumnsprings
Con Artist

Jul-31-2016 03:31

Luc,

Thank you so much. I have a feeling I'm going to be forced to become much more Zen than I currently am.

I am focusing on getting lots of fruits and veggies, taking my vitamin D (and may be adding calcium, although I've had problems with calcium doodlebug before. - That should read "supplements" but doodlebug was just too funny), trying to let go of stress, and learning to listen to my body.

I don't listen very well. Breit and Sultry de Mon can both attest to that, as can jroepel. I don't like to acknowledge the limits my body places on me. I feel it should be my tool, not my boss.

Resting is very hard as well. Which is weird, given how utterly exhausted I am. Sometimes the pain is too much, sometimes my mind won't shut off.

I adore tea, both herbal and the real stuff so maybe I will have to develop a bedtime "ritual" to help my mind get ready for bed. It would obviously include tortures and inflicting bald spots on the nearest fuzzy tummy.

If there is something you so can do for me, I will absolutely let you know.

For now, prayers, positive thoughts and encouragement are welcomed wholeheartedly.

Lady Jas
Lady Jas
The Chosen One

Jul-31-2016 09:38

Autumn, my dear friend. Thank you for keeping me upadated on everything. I may get busy with both jobs, but know that I never forget you in my daily Prayers and I"m always here if you need to talk/need a shoulder to cry on.

We've been friends for a long time now, and I'll support you in any way you need.

BIG BIG HUGS and KISSES from me and little Jasper!

We love you and JR dearly!

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