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An update on my condition
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Autumnsprings
Autumnsprings
Con Artist

Jul-28-2016 21:20

Hi everyone.

I realize not everyone knows of cares about what's going on with me (and that's fine! 😉)

But for those who do, it's easier for me to do this than send individual PMs.

To sum up, on Saturday, the 16th, I noticed I was losing my peripheral vision in my left eye. This terrified me. I told Justin (jroepel, my fianće) after he got home from work.

By Sunday, I was essentially blind in that eye. We went to the ER. They did a head CT and some blood work. The bloods were fine. The CT showed something called an arachnoid cyst. Apparently they're common, benign and don't usually cause symptoms. So it wasn't the problem. The ER doc referred me to an ophthalmologist.

On Monday I rested because I was exhausted.

Tuesday I called the opth and got an appointment that afternoon. He said my eyes were identical. No obvious problems. The loss of vision was probably because of inflammation of the optic nerve. He wanted to see my eyes without dilation, so I went back Wed morning.

Wednesday he looked again and there was no change. Retina had no tears or anything like that. He ordered an MRI. I got that done that afternoon.

Thursday morning he called to tell me the MRI showed inflammation of the optic nerve. It also showed I have Multiple Sclerosis. He ordered a 5 day course of steroid infusions and referred me to a neurologist.

I went to the hospital everyday so they could pump massive amounts of steroids into my system.

I was lucky, blessed, whatever, that the neurologist could see me on Tuesday, the 26th. Appointments usually take months to get. I got seen within a week.

On Tuesday, I finished the steroids and saw the neuro. He was great.

He showed me the MRI so I could see the lesions on my brain. There are about a dozen, which he indicated was a small amount. The lesions were fairly small. The two biggest ones were in my vision and balance centers. Surprisingly the one in the vision center was not causing the problems with my vision.
Cont.

Replies

Autumnsprings
Autumnsprings
Con Artist

Jul-28-2016 22:40

Taking it easy, finding, and obeying my limits are hard things for me. I tend to go all out or not at all. I can't seem to find a good medium, lol.

But I will learn. Or at least work on it.

Yeti Face
Yeti Face
Pinball Amateur

Jul-29-2016 00:45

I was thinking "flare ups" sounded very much like a chronic illness term before you mentioned you also had them. Do happen to have fibro?

Autumnsprings
Autumnsprings
Con Artist

Jul-29-2016 00:51

Yes I have fibro as well. I had hoped the MS would account for some of that pain, but apparently not. That was disappointing.

Vulkie3
Vulkie3
Haynes

Jul-29-2016 04:24

Thank you very much for the update Autumn. Again, my best wishes to you and Jroepel, and hopefully, you'll keep it up like you've been doing so far - it's very inspiring to see that you're not about to give up.

I fully agree with Breit on taking enough rest and listening to your body, even if that means you've got to set some limits on your daily schedule. Try to work on it, because it'll only get harder the more you delay it...


Ms Helen
Ms Helen
Con Artist

Jul-29-2016 10:47

*Hugs*

Theres's really not much more I can say than we've already said but you know I'm here if you need me :)

Autumnsprings
Autumnsprings
Con Artist

Jul-29-2016 11:02

thanks guys. the hardest thing for me will be resting. even if i'm exhausted i can still have trouble sleeping. it's quite frustrating. but im going to have to learn!

My auto injector thing came today for my medicine. This thing is like a foot long! It's not subtle at all, lol.

BadAss
BadAss
Charioteer

Jul-29-2016 11:22

If you have a hard time falling asleep, picture yourself doing a villain hunt and getting an endless string of repeat clues.

Vulkie3
Vulkie3
Haynes

Jul-29-2016 11:47

^ not sure how that helps with sleeping - imo, that's more of a nightmare and makes me want to wake up asap :P



Autumnsprings
Autumnsprings
Con Artist

Jul-29-2016 11:49

i agree with vulkie! that would amp my heart rate up through the roof!! i'll just imagine ive had the easiest villain hunt ever and the prince wants to give me everything!



Keira Ann
Keira Ann
Bloodhound

Jul-29-2016 15:52

Thanks for the update. I echo what Breit said. Listen to your body and know your limits.



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